The Spinal Cord Tumour Forum


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Welcome to the Spinal Cord Tumour forum

Spinal Cord This is a website for people in the UK who have had, or whose lives have been affected by, benign spinal cord tumours. Tumours which grow inside the spinal cord are rare. Despite the fact that they are usually benign they can cause enormous problems as they can damage nerves and disturb the functions of different parts of the body. Even if an operation to remove the tumour has been a success there can be long-term difficulties afterwards.

 We created the site after seeing our lives changed after having operations to remove benign spinal cord tumours.  Neither of us had ever made contact with another person with this condition until we were fortunate enough to be put in touch with each other by the Brain & Spine Foundation. We now correspond with each other regularly and find it helps to share our experiences. We set up this site in order to reach other benign spinal cord tumour sufferers, to share our experiences, share useful information and to help ourselves by helping each other.

New Message Board - an opportunity to reach out to others

If you wish to reach out to others to share your experiences then you should click on the "message board" option at the top of this page, and post a message and hopefully other people will respond.

Sending us a personal email

If you want to contact us by sending a personal email then click on "contact"  option and send us your email and one or both of us will reply direct to you. Your email will not be viewed by other site users.  

Thank you for visiting,
Carole & Helen